There are some nights when I just want to get her to bed so I can have some down time or even extra sleep. And then there are some like tonight when I sit in the chair an extra long time with her snuggled up on my chest, her soft, little cheek pressed into my neck, as I listen to every deep and sleepy breath. So grateful for these sweet moments. Thank you, Jesus.
Our daughter, Brooklyn Hope, was born with a rare congenital heart defect called Hyploplastic Left Heart Syndrome (HLHS) in October 2013. This is our story of God's abundant grace and never-ending love...
Monday, October 13, 2014
crazy hair
Thursday, October 2, 2014
just a few fun pics
sweet sleeper
"you gonna let me out?"
no words...this one makes me smile so much
"what do you mean you ate all the fries?!"
"what? you didn't want me to re-organize the tupperware?"
fun at the park with sis
happy target shopper...like mama
Monday, September 29, 2014
11 months!
Four weeks from today this happy little pumpkin will be ONE! And, yes, we are savoring every. single. moment. She's scooting everywhere. Getting stronger and stronger. Working hard in PT twice a month and at home daily. Still not a fan of food but loves her bottles. Loves blocks, books and Tupperware. Great sleeper. Happy, happy baby.
Saturday, September 27, 2014
Tuesday, September 16, 2014
standing
life is good
Life has been quite a whirlwind settling into new routines with school and Fall activities. Thus the long delay in posting.
Brooklyn's cardiology check-up in mid-August went very well. Though she protested through both, her EKG and echo showed good heart function. Her oxygen level and heart rate were good, and, though she's still a peanut and probably always will be, she continues to gain weight and grow well. Our cardiologist, Dr. Lee, pictured below, said Brooke is doing so well overall. In fact, we don't have to go back for SIX MONTHS! Like, NEXT YEAR! What?! So amazing. We made time to visit one of our favorite places in the hospital, the rooftop garden, while we were there as well as the CICU. Everyone was delighted to see how good Brooklyn looks and how well she's doing.
Brooklyn's cardiology check-up in mid-August went very well. Though she protested through both, her EKG and echo showed good heart function. Her oxygen level and heart rate were good, and, though she's still a peanut and probably always will be, she continues to gain weight and grow well. Our cardiologist, Dr. Lee, pictured below, said Brooke is doing so well overall. In fact, we don't have to go back for SIX MONTHS! Like, NEXT YEAR! What?! So amazing. We made time to visit one of our favorite places in the hospital, the rooftop garden, while we were there as well as the CICU. Everyone was delighted to see how good Brooklyn looks and how well she's doing.
At Brooke's nine-month check-up, her pediatrician was amazed at how well she is doing overall. The only even slight concern he had was her lack of interest in eating pretty much everything I try to give her. He offered a feeding evaluation with a speech therapist, which we had last week. Brooke was a show-off for the therapist and ate better than she ever had. :) The therapist indicated that she is really only delayed by a few months with feeding and doesn't consider her to have any real oral aversion. Yay! And thankfully Brooke is still getting the calories and nutrition she needs from the fortified formula.
To say we're grateful for how well Brooklyn is doing and how normal life seems at this moment would be a HUGE understatement. Praising God for His faithfulness!
Tuesday, July 29, 2014
nine months old!
We are so grateful Brooke is doing so well. She loves to sit and play (and scoot around on her bottom) on the floor. :) Loves her Jumperoo. Loves to smile at her sisters. Loves kisses from her daddy. Loves to snuggle with her mommy. Loves her bottles. Loves bath time. Loves to sleep. An all-around happy, smiley, chatty, growing and thriving baby! Praise The Lord!
Brooke has physical therapy appointments once a week, then we work on things at home to help with core strengthening and skills like going from laying to sitting, getting into crawling position and eventually crawling. She is steadily gaining strength and working toward those major milestones.
Our next cardiology follow-up in St. Louis is in a couple of weeks. Looking forward to seeing our SLCH family! We miss them!
Enjoying the water on our recent vacation...
Big sisters enjoying the water...and their baby sister in the water...
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