Thursday, March 13, 2014

home again

Well, another quick trip to St. Louis is behind us. We enjoyed, once again, seeing some of our favorite nurses and doctors, and they loved seeing how big Brooklyn has gotten. John and I were talking while we were there about how, in a weird kind of way, we're going to miss these frequent trips to St. Louis when the follow-up becomes less intense. St. Louis feels like home to us in a sense. I guess because the team caring for Brooke has really become like family. I really do love those folks. And I love that place

It was good to get back home last night though and be together again as a family. Brooke still isn't quite back to herself, especially with sleeping, unfortunately. And she has the sweetest little cry that is still so hoarse from having a breathing tube during the cath. Reminds me of when she had surgery. 

At conference yesterday the surgeon's recommendation is that they will not put a stint in that narrowing LPA during the Glenn. Our cardiologist said she got to "show  off" Brooke and her great weight gain and such. :) Doc says she is ready for surgery. Now our focus is enjoying our family time the next week and a half and keeping everyone healthy. If Brooke gets so much as a cold, her surgery date could be affected. So, that's our big prayer request right now. That as well as Brooke's sleeping (which obviously affects our sleeping). :) She just seems a bit more uncomfortable and is also coughing quite a bit (presumably from the breathing tube) which initiates a lot of spitting up. Her gag reflex is so sensitive because of the NG tube. Poor baby. We can't wait to get rid of that thing!

Thanks again for thinking of us, lifting us in prayer and loving us!

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