Wow! I can't believe it's already been over two weeks since our last follow-up appointment. Brooklyn checked out well. Praise the Lord! Life has surely been happening since. And THAT is the best news! We are loving being out more and more and enjoying the simple pleasures of life...taking walks in the neighborhood, taking big sisters to the park, going to the grocery, etc. It was a LONG winter!! :)
As far as her check-up back on the 10th goes, Brooke's chest x-ray looked good. Echo looked good. Numbers looked good. She looks good. :) Our next check-up in St. Louis is in early May. So strange not to be going back every other week! Woohoo!
As far as her check-up back on the 10th goes, Brooke's chest x-ray looked good. Echo looked good. Numbers looked good. She looks good. :) Our next check-up in St. Louis is in early May. So strange not to be going back every other week! Woohoo!
So, for the prayer requests...
Tonight (Sunday) I pulled Brooklyn's NG tube, and we are giving it another trial run for the next day, maybe two, without the tube for feedings. Typically, Brooklyn gets a vast majority of her calories through the tube during her continuous overnight feed. She loves bottle-feeding for the most part (and takes four per day currently), but she just hasn't taken the volume (and calories) she needs overall.
In working with our team (speech therapist, cardiologist, NP and dietitian), we agree that it's best to give bottle-feeding a try for an extended period (1-2 days depending on how she does) without the tube in place.
Will you pray that our sweet babe just takes off with these bottles in the next day or two?
Specifically, please pray that...
*She learns quickly what it feels like to be hungry
*She understands that bottles can satisfy that hunger
*She maintains a positive association with bottles especially throughout this trial
*She takes significantly more volume than she has thus far. She averages about 30-35 mLs per bottle. This is a good increase from even previous weeks, but it is still only about 1/4 of the volume that a healthy almost-six-month-old would typically take.
We have high hopes as usual for our sweet baby girl. We would love to get rid of the NG tube sooner rather than later, but we know that, as Brooklyn's speech therapist says, "This is a marathon, not a sprint." Yes. Yes it is. Speaking of our speech therapist, she has been such an encouragement to me, and I am SO grateful God crossed our paths on this journey. We love you so, Jeanne!
Thank you so much for lifting us in prayer, friends and family!
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